ALD Life is a patient support group and registered charity for patients and families affected by Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN) – two rare genetic conditions that affect mainly males. For more information about ALD and AMN, please visit our patient information section.

You can also keep updated with our charity and the latest breakthroughs in our latest news section.

ALD Life is proud of being members of different professional organisations including:

Genetic Alliance UKALD-AMN-Global-AllianceNCVOInstitute of FundraisingFRSB


Patience is a virtue! Something families affected with ALD have in abundance. If you would like to find out why, please take a look at our Patience is a virtue campaign.