ALD Life is a patient support group for patients and families affected by Adrenoleukodystrophy (ALD) – a rare genetic condition that affects young boys. For more information about ALD, please visit our patient information section.

The charity was set up by Sara Hunt, a single mother of two children with ALD. You can read more about Sara’s story here.

You can also keep updated with our charity and the latest breakthroughs in our latest news section.

ALD Life is proud of being members of different professional organisations including:

Please visit the Remembering Alex Hunt Facebook Group. If you would like to be added as a member, add us as a friend.