ALD – Too rare for YOU to care


  • ALD Life

    Alex Hunt was born a normal healthy boy before he was diagnosed with adrenoleukodystrophy (ALD) in 2001- the inspiration behind the set-up of ALD Life…

    > Read Alex's story
  • ALD Life

    Patience is what our families have in abundance – not because it’s a virtue but because they have no choice…

    > Read why

Please read carefully!

Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) are important potential underlying diseases to consider in boys and men with primary idiopathic (unexplained) adrenal failure/Addison’s Disease where adrenal antibodies cannot be detected and there is no other obvious cause of adrenal failure.

For more information, please visit our Link between ALD and Addison’s Disease Project page.

ALD Life Charity Appeal

Could anything be worse than losing your child? That's exactly the feeling parents with a child with...

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ALD Diaries


donny was diagnosed with ALD just before christmas... read more



Tomorrow, we'll be attending @GeneticDisUK and @GlobalGenes Genetic Disorders Leadership Symposium