ALD Life is a patient support group and registered charity for patients and families affected with Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN) – two rare genetic conditions that affect mainly males. You can find more information about the conditions on our patient information section.

Every week, we publish latest news feeds on the charity and health related news on our latest news section.

We are proud to become members of different professional organisations including:

Genetic Alliance UKALD-AMN-Global-AllianceNCVOInstitute of FundraisingFRSB


Join Professor Peter Hindmarsh from Great Ormond Street Hospital on 14 March to discuss getting steroids right and minimising side effects. Further details: