• ALD Life
  • ALD Life

    We’re working to make sure all endocrinologists in the UK start to test young males with idiopathic Addison’s disease for ALD…

    > Read more
  • ALD Life

    Patience is what our families have in abundance – not because it’s a virtue but because they have no choice…

    > Find out why

Please read carefully!

Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) are important potential underlying diseases to consider in boys and men with primary idiopathic (unexplained) adrenal failure/Addison’s Disease where adrenal antibodies cannot be detected and there is no other obvious cause of adrenal failure.

For more information, please visit our Link between ALD and Addison’s Disease Project page. CAH is us also have some practical information if you suffer from Addison’s disease.

ALD Life Charity Appeal

Could anything be worse than losing your child? That's exactly the feeling parents with a child with...

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ALD Diaries

ALD Diaries

Zachary's Journey

Zachary who is 7, is 10 months post bone marrow transplant,... read more



Please help @melanie_stand to raise money for @ALDLife by doing tandem skydive in October


A great photo compilation from the ALD Life Community Weekend last month where we spoke about #NewbornScreening for #ALD in California and throughout the United States. ...

This past weekend I had the honour to photograph the ALD Life Community Weekend, ALD Life is a charity to promote awareness, research and prevention of Adrenoleukodystrophy and Adrenomyeloneuropathy. I had such a wonderful time! I feel humbled and inspired by all the individuals I had a chance to meet. Please visit their website: and please "like" their facebook page: