ALD Life is a patients’ support group working with patients and families with a diagnosis of Adrenoleukodystrophy – ALD or Adrenomyeloneruropathy – AMN, which are two rare genetic conditions (to understand more about the conditions go to the section What are ALD and AMN?)

The charity has been set up and it’s run by Sara, the mother of two children with the ALD.

You can find more about Sara’s story here.

ALD Life is proud of being members of different professional organisations: