Staff and Trustees



SSara Huntara Hunt, CEO
Founder of ALD Life with a professional background in administration, accountancy and desktop publishing and personal experience of symptomatic ALD, asymptomatic ALD, bone marrow transplant, AMN symptoms and genetic counselling.



KarenHarrision_150x150Karen Harrison, Project Manager Endocrine Awareness Project
I have three sons – one has symptomatic ALD, one who died aged eight and my other son is unaffected. I have a good knowledge of ALD/AMN, BMT, Addison’s disease and female carrier symptoms. I thoroughly enjoy making a difference to those affected by ALD/AMN.


Lydia Edwards, FundraisingLydia Edwards - Fundraising & Communications Manager & Communications Manager
Charity fundraising and marketing specialist with project management and training experience at a range of charities. Commerical sector background in sales, marketing, account management and PR.





We have board of trustees who help ensure the successful running of the charity. They develop our fundraising strategy and set the overall direction of the charity. They’ve been all directly or personally affected by ALD or AMN, and as such have a great deal of commitment to the charity.

If you feel you have the skills, knowledge or passion to help our charity grow further and want to join our team, please get in touch:



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