Moya Brady – Patron
I have been extremely touched by Alex and Ayden’s story. Anyone who takes just one minute to truly personalise this situation could not fail to be moved and left in awe at such courage and spirit, not to mention hard work!
I am happy to lend my support and hope you will too whether it’s by giving as financal donation, collecting together unwanted clothes for the charity shop, writing a letter to the government or getting ten friends to sponsor you to swim ten lengths at your local pool!
Do anything because anything can help.
Sean Gallagher – Patron
I met Sara, Alex and Ayden recently through a mutual friend. When Sara asked if I would be a patron for ALD Life, I was very honoured to be able to use my career to help such a worthwhile cause.
Before meeting the family I knew nothing whatsoever about ALD and have been devastated to hear of it’s appalling consequences. The charity provides a vital support network for families and gives grants for those most in need. At present, as a small charity it can only provide a limited amount of funding for essential research and uses most of its resources to provide support services and events for families. I find it shocking that all funding for research has to come from charities such as ALD Life, and hope to be able to use my status to encourage more people to raise funds for this vital work.
If you are reading this, I hope you can find it in your heart (and your wallet!) to help ALD Life realise its dream of finding a cure for this horrific disorder.
Linda Henry – Patron
My daughter went to school with Alex, eldest son of Sara founder of ALD Life. When we heard about Alex’s diagnosis of ALD, I was fortunate enough to be able to use my influence to arrange a fundraiser by the cast of “Bad Girls”. We were able to send the family to Disneyland, Florida for a dream holiday and what was left over Sara immediately sent to research projects for ALD. This was the start of the journey towards the formation of ALD Life and I am so proud that I was able to help in this.Having witnessed Alex’s relentless deterioration, it makes me sad that there is so little that can be done for sufferers of ALD. I have seen the battles Sara and Alex’s younger brother, Ayden have had to face, and am only too happy to be able to help raise the profile of ALD Life. It is vitally important to have a comprehensive support group for such a horrific and rare disorder, and have watched the charity go from strength to strength over the years. It is an honour to be involved. This awful disorder has to be stopped, so I urge you to support ALD Life in any way you can.
Sarah, Duchess of York – Ambassador
I would like to work as an ambassador to ALD Life and would like to help raise awareness and support you when and where I can
You can read a letter from Sarah, Duchess of York to the charity about her role.