My Story

My story began when my 7-year-old nephew was diagnosed with ALD due to the symptoms he had and through all the tests that he had done the summer of 2007. Once my nephew’s mother, Audrey, was informed more…

2 sons with ALD

Hi my name is Donna,i have 2 boys both with ALD Shaun the oldest at 17yrs and Lee the youngest at 12. Both boys were diagnosed in march 98. Lee was the first to be diagnosed after going into Addisons more…

Jessica’s battle (the only girl)

Jessica was 12 years old when ALD took its hold. Up until that point, she had been happy, and very out going. She loved to read, and loved to do internet searches on various types of medications. In more…


18 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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