OCS+BLF--March-15  donate_button

My Story

My story began when my 7-year-old nephew was diagnosed with ALD due to the symptoms he had and through all the tests that he had done the summer of 2007. Once my nephew’s mother, Audrey, was informed more…

2 sons with ALD

Hi my name is Donna,i have 2 boys both with ALD Shaun the oldest at 17yrs and Lee the youngest at 12. Both boys were diagnosed in march 98. Lee was the first to be diagnosed after going into Addisons more…

Jessica’s battle (the only girl)

Jessica was 12 years old when ALD took its hold. Up until that point, she had been happy, and very out going. She loved to read, and loved to do internet searches on various types of medications. In more…

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Thank you for your support! ...

We played a Mixed game against LSE today and had a 6-10 loss in a very well fought and fun match! Thank you LSE for being great opponents today! Also, as in the photos, we have all painted our faces the colours of Rare Disease Day which is upcoming on the 28th to show support for ALD Life, the charity who help patients and families of Adrenoleukodystrophy and Adrenomyeloneuropathy. Please help us to provide better awareness and find better treatments. You can help by raising awareness and taking part or donating by texting 'ALDL18 £5' to 70070. Or you can donate on Just Giving here - www.justgiving.com/campaigns/charity/aldlife/rarediseaseday2018 We want anyone and everyone to paint their faces and pass it along! Man of the Match: Aidan Women of the Match: Sarah, Pip, Jess, Amy #LUSL #Ultimate #Ultimatefrisbee #Outdoors #Outdoormixed #Rarediseaseday #warpaint #blueandwhitearmy #Stmarys #simmies #LSE #Beavers #Ostrich #HalfMatchMan #Substitutionsmatter

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