OCS+BLF--March-15  donate_button

Journey

10th December 2014

I AM 20 YEARS OLD. I WAS GIVEN A FULL COLLEGE DIV I SOCCER SCHOLARSHIP IN SAN FRANCISCO CA. MY 2ND YEAR DURING FALL TERM MY SOCCER COACH NOTICED I HAD CHANGED SOCIALLY, PHYSICALLY AND MENTALLY. I WAS A HONOR STUDENT AND HAD PROBLEMS WITH MEMORY AND COGNITIVE ISSUES. I WENT HOME IN DEC 2003 AND WAS DIAGNOSED WITH ADDISON GIVEN STEROIDS AND SENT BACK TO COLLEGE. I FINISHED WINTER TERM AND TOLD MY PARENTS I WAS NO BETTER. THEY KEPT TAKING ME TO DOCTORS UNTIL ONE PHSYCOLOGIST 4/04 DETERMINED MY MENTAL STATE AT 3RD GRADE LEVEL AND SENT ME TO A NEUROLOGIST WHO SAID THE MRI WERE NORMAL BUT MY PARENTS CALLED DR MOSER AT KKI IN MD AND 7//04 HE SENT TESTS RESULTING WITH POSITIVE DIAGONSIS OF AMN A FORM OF ALD. I AM STILL WALKING, DOING WATER AROBICS 3 TIMES WEEKLY PLUS WEIGHTS. I HAVE LOST 45 POUNDS. I AM TAKING MUSTARD OIL, AND GO DAY TO DAY. MY MOM IS MARILYN AND IS THE CARRIER. MY UNCLE DIED AT 24 OF UNDIAGNOSED ADDISON. MY SISTER IS AWAITING HER STATUS OF IF SHE IS A CARRIER. MY GRANDMOTHER WAS ADOPTED AND DR MOSER IS TRACING HER BLOOD LINES TO STOP THIS HORRIBLE DISEASE. I HAVE NOT RETURNED TO SCHOOL OR WORK BECAUSE OF MY MENTAL PROBLEMS. BEING AN ATHLETE I STILL WON’T TAKE ANY ANTIDEPRESSANTS OR EXTRA MEDS AS I RELY ON MY INNER SELF COURAGE. CALL ME ANYTIME! I WISH MY BEST TO ALL!

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ALD Life's newly formed Steering Group were put to work this month reviewing our Practical Information Leaflets. We are very grateful and impressed with the invaluable input and suggestions made and have already started work on updated versions. ...

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