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This Year’s Event

This year’s Community Weekend took place at the Crowne Plaza Hotel in Docklands, London, opposite the iconic O2. Bringing together over 150 ALD and AMN sufferers, their families, researchers and doctors, this event was our largest and longest to date! The agenda included presentations from renowned scientists and specialists, as detailed in the conference brochure. To see all presentations including summaries please click here.

Once again, photographer Ann Bloom was able to capture the mood of the event with some truly memorable images which can be viewed here.

Feedback from this year’s event has already been phenomenal –

 

“Brilliant weekend, fantastic content, presentations were super”

“I learnt so much and really enjoyed talking to others in similar situations. Made me feel less isolated and have made ongoing friendships from the weekend.”

 

ALD LIFE THANKS OUR GENEROUS SPONSORS FOR THEIR INVALUABLE HELP WITH THIS IMPORTANT EVENT

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European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. ��Support the #ProtectERNS campaign by adding your signature: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=5e939ee3e2&e=9105c....

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