We have a strong community of patients and families with the conditions and we love to stay in touch and share opinions and find mutual support in each other.
If you want to be part of our community and if you have a child with ALD you are more than welcome in our ALD Health Unlocked Group
If you have got AMN, AMNeasier is the group for you.
ALD- AMN Global Alliance
ALD Life is the promoter and one of the members of the ALD-AMN Global Alliance which aims to raise the awarenees around ALD and AMN internationally and coordinate efforts form different organisation in USA and Australia to raise more funds for our mission and support research project all over the world.
We know it is an ambitious project but we really believe in the power of the alliance.
Rare diseases need to be united to make their voice heard!