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Rare Disease Day 2017

Rare Disease Day 2017

This February ALD Life is promoting Rare Disease Day with a very special online campaign using facebook and twitter. Every day we will be posting a photo and sentence from a sufferer of ALD or AMN summing up how their rare disease affects them.

On Rare Disease Day itself we will populate this page with all the photos and sentences and create a poster crammed with impact to help raise awareness of ALD and AMN.

We’re also raising awareness through our charity shops with posters displayed in all shop windows. Additionally we’ll be conducting a survey to find out how many of our customers have a rare disease with results to be published online and in shops on 28th February along with a special Rare Disease Day 28% discount for all our wonderful customers.

If you’d like to help us promote awareness of Rare Disease Day and support ALD Life beneficiary services please don’t forget to Give the Gift of Hope.

 

 

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