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Rare Disease Day 2017

Rare Disease Day 2017

This February ALD Life promoted Rare Disease Day with a very special online campaign using facebook and twitter. Every day we posted a photo and sentence from a sufferer of ALD or AMN summing up how their rare disease affects them.

From these we created a poster containing all the photos and sentences and crammed with impact to help raise awareness of ALD and AMN. The poster can be viewed here.

We also raised awareness through our charity shops with posters displayed in all shop windows. On 28th February our shops offered customers a special Rare Disease Day 28% discount. We also surveyed customers during February to see how many were affected by a rare disease.

Following our survey, we were astonished to learn that 242 customers with a rare disease visited an ALD Life charity shop in February. We publicised this in all our shops, facebook and twitter to show that collectively, rare disease really isn’t that rare at all.

If you’d like to help us promote awareness of Rare Disease Day and support ALD Life beneficiary services please don’t forget to Give the Gift of Hope.

 

 

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