ALD Life sends £5,000 towards research in America

29th November 2017

Dr Florian Eichler


ALD Life is sending £5,000 in funding support to esteemed ALD and AMN specialist and friend to ALD Life, Dr Florian Eichler. Dr Eichler is investigating the use of gene therapy to alleviate AMN symptoms. This funding will be used to develop measurement systems to determine balance improvements.


“…these funds will allow us to advance AAV-mediated gene delivery for Adrenomyeloneuropathy by defining the degree of balance problems gene delivery can correct. The support will help establish a collaboration between Massachusetts General Hospital and the vestibular lab at the Mass Eye and Ear Infirmary to address this.” – Quote from Dr Florian Eichler.


17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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