Cameron’s 21st Birthday Ball

1st April 2017


Karen, our Beneficiary Services Manager, threw son Cameron a magnificent birthday ball to celebrate his 21st birthday on 11th March. For those of you who don’t know Karen’s story, her twin sons Cameron and Alexander were diagnosed with ALD in 2002. Sadly they lost Alexander and Cameron had two bone marrow transplants which unfortunately did not stop the progression of ALD symptoms. You can read more about her story here.

Cameron’s birthday ball was a resounding success raising much needed funds for ALD Life.

Read Karen’s report of the night  here.


20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at or ‪404-778-8518‬. ...

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