Helpline: Join our contacts list
5th February 2015
Can you provide support, advice and information to a newly diagnosed patient or family? We all know it can be a terrible and devastating time – when you first hear you or your son has a diagnosis with ALD or AMN.
Many patients and families get in touch with us every year – looking to speak to someone who has been through the same circumstances. It can help give newly diagnosed patients and families emotional well-being – hearing from someone who has been through it all before.
Can you be there for a newly diagnosed patient or family? Please get in touch to firstname.lastname@example.org with your full name, address, telephone number and how ALD/AMN affects you, including as much detail as possible.Tweet