donate_button

Helpline: Join our contacts list

5th February 2015

Helpline

Can you provide support, advice and information to a newly diagnosed patient or family? We all know it can be a terrible and devastating time – when you first hear you or your son has a diagnosis with ALD or AMN.

Many patients and families get in touch with us every year – looking to speak to someone who has been through the same circumstances. It can help give newly diagnosed patients and families emotional well-being – hearing from someone who has been through it all before.

Can you be there for a newly diagnosed patient or family? Please get in touch to info@aldlife.org with your full name, address, telephone number and how ALD/AMN affects you, including as much detail as possible.

Facebook