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Living with Adrenomyeloneuropathy (AMN) – A Clinical & Research Perspective – Listen live to the Rareshare podcast

13th June 2017

Would you like to hear the latest news from a clinical research perspective on Living with Adrenomyeloneuropathy (AMN)? You are invited to participate in asking questions to a panel of experts at Rareshare which if selected, will be featured and answered on their live podcast. To submit a question, please follow the link to their online form here. Their podcast – Living with Adrenomyeloneuropathy (AMN) – A Clinical & Research Perspective will be live at 16:00 pm 14th June (GMT) UK time – or if you live in America 10:00 am (EST) 14th June.


This podcast will be featuring Dr Paul Orchard (MD), and Dr William B. Rizzo (MD) along with a team of medical scientists, clinicians and will discuss issues such as genomics, biotechnology research and more. There will also be a section dedicated to answering your questions about AMN.


To watch Rareshare’s podcast live, please follow this link, alternatively click here to be taken to their iTunes Rare Genomics/RareShare Podcast Series. For further information on the podcast, please click here to be linked to Rareshare’s website.


ALD Life's newly formed Steering Group were put to work this month reviewing our Practical Information Leaflets. We are very grateful and impressed with the invaluable input and suggestions made and have already started work on updated versions. ...

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