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Message in a bottle

4th December 2017

International humanitarian organisation The Lions Club has created a potentially life-saving scheme – message in a bottle. Message in a bottle allows emergency services to know basic medical information about you as well as specific medication needs. To find out more, please click here.

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17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!
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