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The race for rare disease

25th July 2017

Jon Milne is going on an epic adventure of a lifetime for ALD Life!

Jon has always been a keen sportsman, aged 30 he had to give up his love of playing rugby due to some injuries he sustained taking part in the physical activity and decided to take up sailing. After years of sailing, he wanted to take his love of the sport to new waters and is soon to be departing on one of the most gruelling challenges a sailor will ever endure, the unforgiving open sea.

To find out more about his sailing adventure please click here.

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ALD Life's newly formed Steering Group were put to work this month reviewing our Practical Information Leaflets. We are very grateful and impressed with the invaluable input and suggestions made and have already started work on updated versions. ...

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