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Support the ALD Life Community weekend by voting for us in the Aviva Community Fund Scheme

25th October 2017



The ALD Life Community Weekend, as many of you are aware, gives valuable insight to families, doctors and scientists into the world of ALD and AMN.

This year ALD Life has been entered into the Aviva Community Fund Scheme to win up to £10,000.

To enable us to be in with a chance of winning we need your help – should we win, the funds will go towards our ALD Life Community Weekend 2018.

The  ALD Life Community Weekend allows those affected by ALD and AMN, specialist doctors, scientists and other interested professionals to come together and share support and information as well as give updates on research and emerging treatments. It is also a chance to catch up with old friends and meet new people, support one another and enjoy being with others that truly understand what living with ALD and AMN means.

All you have to do is click on the link, register, search for ALD Life and vote – you will be given ten votes, and you can use them all for our project!






Thank you for your support! ...

We played a Mixed game against LSE today and had a 6-10 loss in a very well fought and fun match! Thank you LSE for being great opponents today! Also, as in the photos, we have all painted our faces the colours of Rare Disease Day which is upcoming on the 28th to show support for ALD Life, the charity who help patients and families of Adrenoleukodystrophy and Adrenomyeloneuropathy. Please help us to provide better awareness and find better treatments. You can help by raising awareness and taking part or donating by texting 'ALDL18 £5' to 70070. Or you can donate on Just Giving here - www.justgiving.com/campaigns/charity/aldlife/rarediseaseday2018 We want anyone and everyone to paint their faces and pass it along! Man of the Match: Aidan Women of the Match: Sarah, Pip, Jess, Amy #LUSL #Ultimate #Ultimatefrisbee #Outdoors #Outdoormixed #Rarediseaseday #warpaint #blueandwhitearmy #Stmarys #simmies #LSE #Beavers #Ostrich #HalfMatchMan #Substitutionsmatter

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