Community Weekend 2018

21st May 2018

  View the presentations and photos from the 2018 Community Weekend here now!

Zaki’s Journey – part 2

23rd February 2018

Zaki was admitted back into Great Ormond Street hospital on the 15th January 2018, which will be his and his mum, Carlie’s new home for at least 6 weeks- Zaki had lots of assessments more…


20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at or ‪404-778-8518‬. ...

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