Zaki’s Gene Therapy journey

31st January 2018

Zaki was one when he was diagnosed with adrenoleukodystrophy (ALD) in September 2015 due to his Uncle Billy being diagnosed. His brother JJ and his cousin Tyler also have ALD. Billy more…

Message in a bottle

International humanitarian organisation The Lions Club has created a potentially life-saving scheme – message in a bottle. Message in a bottle allows emergency services to know basic medical information more…


21 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at or ‪404-778-8518‬. ...

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