HIFA Discussion on Access to Research

23rd July 2015

HIFA (Health Information for All) is delighted to announce a major new thematic email discussion on the global forum HIFA (20 July to 24 August) to explore how to meet the information more…

Fundraising at the Lambeth Country Show

ALD Life at the Lambeth Country Show July 2015

21st July 2015

Many thanks to our dedicated volunteers, staff and friends who helped us to generate valuable funds for ALD Life at the Lambeth Country Show over the weekend (18 & 19th July) more…

Podcast: Living with AMN


29th May 2015

Would you like to learn more about recent clinical and research developments for AMN? Or, ask a question to an expert panel about managing your symptoms? Rare Genomics Institute more…


20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at or ‪404-778-8518‬. ...

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