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AMN Research Survey is now live!

    If you are male diagnosed with AMN, over the age of 18 and living in the United Kingdom, and have not previously had a Bone Marrow Transplant (BMT), we would like to invite you to more…

Exciting developments from Viking Therapeutics

  Viking Therapeutics have announced results from a Proof-of-Concept study for their drug VK0214 which may be effective in reducing levels of Very Long Chain Fatty Acids in ALD http://ir.vikingtherapeutics.com/2017-10-04-Viking-Therapeutics-Announces-Top-Line-Results-from-Proof-of-Concept-Study-of-VK0214-in-In-Vivo-Model-of-X-Linked-Adrenoleukodystrophy-X-ALD.   Tim more…

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20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at dawn.laney@emory.edu or ‪404-778-8518‬. ...

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