donate_button

Patient Liaison Service: Hello!

Kathy Hemestretch & Family

13th April 2015

My Name is Kathy Hemestretch, I have just taken on the roll as Patient Liaison Officer. This is my first “job” for 20 years, as some of you will know me as “Kieran’s Mum” Our more…

Facebook

20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at dawn.laney@emory.edu or ‪404-778-8518‬. ...

View on Facebook