Great North Run: Runners Needed Urgently!

Great North Run 2014

8th April 2015

Can you help us fill our Great North Run places? Do you know anyone who can run for ALD Life? We still have 20 places left for the Great North Run in September.   The Great North more…

Research Update: News from ELA conference

ELA conference

2nd April 2015

Sara and Karen travelled to Paris this weekend to attend the ELA conference and families meeting.   Important updates for our services users are as follows: Patrick Aubourg reported more…


21 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at or ‪404-778-8518‬. ...

View on Facebook