Research: Working with new partners


25th February 2015

We have been working closely with research institutions to help find better treatment for Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN). Funding for research into ALD more…

Rare Disease Day: Days to go!

Rare Disease Day

18th February 2015

Every year, we join together to raise awareness of Rare Diseases, and the impact it has on patients, families and carers. Collectively, Rare Diseases affects more than 30 million more…