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The race for rare disease

25th July 2017

Jon Milne is going on an epic adventure of a lifetime for ALD Life! Jon has always been a keen sportsman, aged 30 he had to give up his love of playing rugby due to some injuries more…

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20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at dawn.laney@emory.edu or ‪404-778-8518‬. ...

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