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International Links

International ALD Conference
International
The Myelin Project www.myelin.org
USA

Patient Organisations:

ALD Connect www.aldconnect.org

The Stop ALD Foundation www.stopald.org

Fight ALD www.fightald.org

United Leukodystrophy Foundation www.ulf.org

Hunter’s Hope Foundation www.huntershope.org

Little Warriors www.littlewarriorsaldawareness.blogspot.co.uk

Be The Match (Related Donor Cord Blood Program) www.marrow.org/relatedcord

 

Other information:

US Social Security and Disability Advice www.ssdrc.com

Social Security Disability Help www.disability-benefits-help.org. Information about ALD and Social Security www.disability-benefits-help.org/compassionate-allowances/neonatal-adrenoleukodystrophy-and-social-security-disability

Federal Resources for Veterans, Seniors, and Disabled Citizens – http://www.expertise.com/home-and-garden/home-remodeling-for-disability-and-special-needs

 

Europe
European Leukodystropy Association www.ela-asso.com

Bundesverein Leukodystrophie e.V., Germany www.bvlev.de
Australia
Australian Leukodystrophy Support Group Inc. www.alds.org.au

Australian Addison’s Disease Association Inc. www.addisons.org.au
Philippines
Philippine Society for Orphan Disorders Inc. www.psod.org.ph

 

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