OCS+BLF--March-15  donate_button

Personal Links

Personal Links
Joe’s website www.mysonjoe.co.uk

Gabriel Pollaco’s website and YouTube page www.gabrielpollaco.blogspot.com and www.youtube.com/user/marquinhosslip?feature=watch
-For those of you that want a translated version of the blog: Translated Version

Fredriks’s ALD-Minnefond website www.ald-minnefond.com
-For those of you that want a translation: Translated Version

Aidan has a Posse! website www.aidanhasaposse.org

James’s web page www.caringbridge.org/nh/jamessturtevant

Rodriguinho Pareja’s website www.rodriguinhopareja.blogspot.co.uk
-For those of you that want a translation: Translated Version

Gui Rodrigues website and Facebook page www.guiguirodrigues.blogspot.com.br and www.facebook.com/LutaDoGuiContraAdrenoleucodistrofia
-For those of you that want a translation: Translated Version

Jack Torrey’s website www.caringbridge.org/visit/jacktorrey

Smile4Jacob’s website www.smile4jacob.co.uk

Tri4joe’s website www.tri4joe.com

Fundación Nicolás’s website www.fundacionnicolas.org
-For those of you that want a translation: Translated Version

Remembering Alex Hunt
ALD Support
Raising Awareness of Adrenoleukodystrophy
Leukodystrophy Family Support Roundtable
Luciano’s Journey with ALD
Parents Connecting for Peroxisomal Disorders
Aidan Jack Seeger
Joshua’s Journey Advocating for Newborn Screening of Adrenoleukodystophy
Adrenoleucodistrofia cerebral infantil ligada al cromosoma
Troca-Troca entre mães especiais
João Vitor Portador de Adrenoleucodistrofia
Un Milagro para Abraham
Fundación Laes Leucodistrofias
Fight ALD for Alex
Project Julian
Luke Cardwell
Austin’s Mighty Angels
Prayers for Donovan Swaim and Ald Awareness
Fight Adrenoleukodystrophy (ALD)
Little Warrior Eoryh
Young ALD Carriers


Thank you for your support! ...

We played a Mixed game against LSE today and had a 6-10 loss in a very well fought and fun match! Thank you LSE for being great opponents today! Also, as in the photos, we have all painted our faces the colours of Rare Disease Day which is upcoming on the 28th to show support for ALD Life, the charity who help patients and families of Adrenoleukodystrophy and Adrenomyeloneuropathy. Please help us to provide better awareness and find better treatments. You can help by raising awareness and taking part or donating by texting 'ALDL18 £5' to 70070. Or you can donate on Just Giving here - www.justgiving.com/campaigns/charity/aldlife/rarediseaseday2018 We want anyone and everyone to paint their faces and pass it along! Man of the Match: Aidan Women of the Match: Sarah, Pip, Jess, Amy #LUSL #Ultimate #Ultimatefrisbee #Outdoors #Outdoormixed #Rarediseaseday #warpaint #blueandwhitearmy #Stmarys #simmies #LSE #Beavers #Ostrich #HalfMatchMan #Substitutionsmatter

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