Contact a Family http://www.cafamily.org.uk/

The British Trust for the Myelin Project http://www.myelinproject.co.uk/Home.html

United Leukodystrophy Foundation http://www.ulf.org/

Children Living with Inherited Metabolic Diseases http://www.climb.org.uk/

The Anthony Nolan Trust http://www.anthonynolan.org.uk

The Stop ALD Foundation http://www.stopald.org/default.asp

The Adrenoleukodystrophy Foundation http://www.aldfoundation.org/

Fight ALD http://www.fightald.org/

X-linked Adrenoleukodystrophy Database http://www.x-ald.nl/

ALD Lebanon http://www.ald-leb.com/

Australian Leukodystrophy Support Group Inc. http://www.alds.org.au/

Australian Addison's Disease Association Inc. http://addisons.org.au/

Site for Andrew Beattie in Canada http://www.andrewbeattieald.com/

The Myelin Project of Canada  http://www.myelinprojectcanada.ca

The UK Genetic Testing Network  http://www.ukgtn.org

MSN site for families to network http://groups.msn.com/leukodystrophyfamily

ELA, France http://www.ela-asso.com/default.htm

BVL, Germany http://www.bvlev.de

Aaron's ALD Website http://www.hultmanhome.net/links.html

The Genetic Interest Group (GIG.org.uk): supporting those affected by genetic disorders.

Glia Research site http://www.glialcell.net

Lorenzo's Oil BBC documentary http://news.bbc.co.uk/1/hi/health/3907559.stm