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Ethos

ALD community
Since the global recession in 2008, we have decided to take steps to make sure we can continue to support patients and families. That’s why our charity’s ethos is to run self-sustainably, emphasising on themes such as mutual benefit and community.

To reemphasise our ethos, we started a charity shop business, so we can make sure we:
1. continue to run as a self-sustaining charity. At present, our charity shops currently cover all our admin and running costs – making sure for every penny you donate, that penny goes straight to supporting patients and families with this devastating disorder.
2. provide mutual benefit and sense of community to people and businesses in south-east London. In 2014, we started a Recycling Craft Project to provide local people and businesses an activity that would make full use of their love of art and creativity.

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20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at dawn.laney@emory.edu or ‪404-778-8518‬. ...

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