Grants Programme

Elphick family
We provide financial support to patients and families to get access to equipment, care or therapy, undergo Bone Marrow Transplant/Gene Therapy or for families in financial hardship or going through bereavement. Grants are given for items and treatments not otherwise covered by the NHS, or necessary health service in your country. Please read details below to apply for a grant.


Grants can only be given for equipment due to a disability need and will not be given for other items unless they are specifically modified for a disability caused by ALD/AMN.  Grants will not be paid for general repairs/maintenance for vehicles unless they are essential for mobility where public transport cannot be accessed, this must be confirmed in writing by a medical professional.

We require an Invoice/estimate for goods before they are ordered, and we will confirm in writing the amount we will pay either towards the equipment or the full amount. We take no responsibility for items purchased and they must be purchased under the recommendation/guidance of a medical professional. Any request for equipment will only be considered on production of a letter from a medical professional stating necessity and that item is not available on the NHS or via Social Services. Payable direct to provider.


We require an invoice/estimate for treatment needs plus letter from medical professional stating necessity and that treatment is not available on NHS. Grants can only be given for treatments not accessible on the NHS or where the waiting list is considered excessive, as confirmed by a medical professional. Payable direct to provider.


We require an invoice/estimate stating the care needs plus letter from medical professional/social worker stating necessity and that care is not available through social services or NHS funded care. Payable direct to provider

Bone Marrow Transplant/Gene Therapy

A copy of a letter from the Consultant confirming that a Bone Marrow Transplant is being undertaken in order to treat ALD. This is intended to help with any extra expense connected to having BMT for ALD and is subject to ALD Life Grant giving policy. Maximum grant £300.00, payable to family


A copy of the death certificate stating ALD as cause of death or contributary factor is required in order to qualify for this grant. This Grant is intended to help with the cost of funeral and associated expenses and is subject to the ALD Life Grant giving policy. Maximum grant £300.00, payable to the family

Financial Hardship

We require financial records as per our overall grant giving policy, as well as evidence that other help has been sought from Government statutory agencies. Payable to family.


Travel grants are also available to help individuals and families in financial hardship to attend appointments and access care for their condition. See our Travel Grant policy for more information.

The maximum any family can have for a year is £1,000 or equivalent, unless otherwise agreed by our Board of Trustees. Board of Trustees agree grants for over £1,000 to a family under very exceptional circumstances.

If you would like to apply for a grant, please read our grants giving policy before applying. To make an application, please download and send our application form to ALD Life, 45 Peckham High Street, London, SE15 5EB or to Karen at 


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