Belfry Hotel Birmingham 2012

Our event in 2012 was held at the Belfry Hotel in Birmingham. It was the first Get Together Family Weekend event held outside London, and first event to begin on a Saturday. Introduction started off with a lunch with a presentation from ALD Life including scientist speakers. In the afternoon, people could participate in a round of golf, or have a manicure, massage and spa treatment. In the evening, we had dinner with a raffle, quiz and music entertainment. Finishing off on Sunday with a focus group session, and more activities and leisure before lunch and finally checking out.


18 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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