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East Sussex National Uckfield 2013

In 2013, we decided to again host the Get Together Family Weekend at a golf resort, outside London. The East Sussex National, known for its relaxing and glorious setting was the home to our Annual Weekend in 2013. It started off with an introduction dinner with a quiz. On Saturday, the adults took part in discussion groups and had a lunch with a presentation from Mark Bostock, our trustee. The children were treated to a trip to Drusillas Zoo Park and a mini golf and laser tag competition. In the evening, everyone was treated to Kim’s special raffle along with a mini casino and magician for entertainment. On Sunday, we held a discussion group on ALD Life’s future, with kids being spoiled with a swimming session at the Hotel spa. Then, we all had send-off lunch buffet.

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18 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!
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