The Grange Tower Bridge 2016

 Grange Hotel Tower Bridge

The countdown starts here for the greatly anticipated 8th weekend get together event which will take place on Friday 27th May 2016 to Sunday 29th May at the Grange Tower Bridge Hotel, London. Save the date and look out for further updates on social media and on the ALD Life website about the ALD Life Community Weekend. You can book today and see the proposed agenda with an impressive line-up of speakers (see details below).


Bookings have now closed

Please make sure that you have sent any additional information and made any additional payments for discounted places before the event (details of packages, prices and terms a can be viewed here).


Weekend Itinerary

The itinerary outlines everything that will be happening over the Weekend including meals, activities for children and adults, formal presentations and the closing Q & A session. As spaces are limited, please make sure that you have booked your place at the Weekend (see booking form above) along with any of the activities listed before you attend the weekend. All attendees will be sent details about booking activities once their booking has been confirmed.


Expert ALD/AMN Speakers  Timings

We are immensely proud to announce our agenda for the speakers as part of the formal part of the Community Weekend 2016 which involves experts on ALD/AMN covering a wide range of topics. As you can see we have some of the most eminent names in ALD and AMN who are leaders in their field from the UK, Europe and the US. Further details about entertainment and workshops will be sent in the new year, but we think you’ll agree this is going to be an event you will not want to miss!







Date/Time: Friday 27th May 2016 (evening) to Sunday 29th May (lunchtime)

Location: The Grange Tower Bridge Hotel, 45 Prescot Street, London, E1 8GP. Tel: +44 (0)20 7959 5000.

Hotel website:



18 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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