Hilton Hotel Tower Bridge 2009

The Get Together Family Weekend in 2009 was booked for the weekend starting 22nd May 2009. It was at the Hilton Hotel at Tower Bridge. The hotel were extremely generous and donated our first place raffle prize. The weekend started on Friday evening with a meal and mingle. On Saturday, people were free to enjoy the hotel’s resources including a gym, spa, sauna and steam room. There was also a nearby health club with access to a swimming pool, fitness classes and a golf simulation lounge. A trip to London was arranged on Saturday, and the day finished with a meal and a chance to mingle plus some surprises, before checking out on Sunday afternoon.


17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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