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Hilton Hotel Tower Bridge 2010

The Get Together Family Weekend in 2010 was our first combined Information Day (formerly AMN Day) and Weekend Get Together. We kicked off with accommodation on the Thursday night for those that could not travel to the Information Day on the Friday morning. Friday evening included a performance by the Sing for Joy group including our very own Chris Ogden.This was followed by a meal and ice-breaker quiz. On Saturday, we had for the kids an animal roadshow, and a gentle taster yoga session especially designed for those with AMN symptoms. We also organised a tour of HMS Belfast, followed by, in the evening, a bouncy castle, face painting and balloon modelling for children, whilst the adults took part in a raffle. Finally, Sunday morning gave our members a chance to see our two charity shops and see first hand what we are doing to raise awareness and funds, signing off with an afternoon lunch.

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17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!
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