Wychwood Park Cheshire 2014

We decided to move our Get Together Family Weekend to a different area of the country again. Wychwood Park in Cheshire was the perfect choice for 2014, with its vibrant atmosphere, contemporary style and amazing views of the Cheshire countryside. We had an animal experience, bubble party, giant wii screen and glitter tattoist to keep children busy throughout the weekend. While, adults were treated to insightful speakers sessions about physiotherapy, benefits legislation, gene therapy, newborn screening, eradicating ALD and endocrine awareness. We also had an introductory quiz, tambola, raffle and casino to keep people entertained during dinner. We also paid tributes to Logan Walker (birthday), Karen Harrison (fundraiser of the year) and Sara Hunt (for founding our amazing little charity). The event was finished with a charity discussion group and lunch. You can find clips from our Annual Weekend on YouTube:
Bubble Party:
Physiotherapy Presentation:
Physiotherapy Exercise:


17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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