European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. Support the #ProtectERNS campaign by adding your signature: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=5e939ee3e2&e=9105c....
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Medical Advisers
We have five medical advisers that help us produce accurate health and social care information and support us with ongoing projects.
Dr Robin Lachmann
Consultant in Metabolic Medicine
National Hospital for Neurosurgery and Neurology
Dr Colin Steward
Consultant in BMT, Genetic and Metabolic diseases
Bristol Royal Hospital for Children
Dr Paul Gissen
Consultant Metabolic Paediatrician
Great Ormond Street Hospital
Dr Alasdair Parker
Consultant Neurologist
Addenbrookes Hospital