donate_button

Research Organisations

Researchers
We are proud to be associated with bluebird bio in the USA and Minoryx in Spain – research organisations dedicated to research into rare disease, and specifically adrenoleukodystrophy. If you are a medical or pharmaceutical company, and wish to work with us, please get in touch.

Facebook

2 days ago

ALD Life

European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. ��Support the #ProtectERNS campaign by adding your signature: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=5e939ee3e2&e=9105c....

Check out Genetic Alliance’s social media toolkit to help spread the word: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=a4e046029e&e=9105c...
...

View on Facebook