Research Organisations

We are proud to be associated with bluebird bio in the USA and Minoryx in Spain – research organisations dedicated to research into rare disease, and specifically adrenoleukodystrophy. If you are a medical or pharmaceutical company, and wish to work with us, please get in touch.


17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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