Research Organisations

We are proud to be associated with bluebird bio in the USA and Minoryx in Spain – research organisations dedicated to research into rare disease, and specifically adrenoleukodystrophy. If you are a medical or pharmaceutical company, and wish to work with us, please get in touch.


2 days ago

ALD Life

European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. ��Support the #ProtectERNS campaign by adding your signature:

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