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faith

10th December 2014

I AM VALERIE, RUBEN’S MOM. ON JULY 15, 2008 RUBEN IS GOING FOR HIS MRI. I KNOW THAT RUBEN HAS LOST SOME OF HIS VISION AND HAS ALSO LOST HIS HEARING. SO FAR HE GETS SO VERY TIRED TO THE POINT WHERE HE JUST THROWS HIMSELF ON THE GROUND. IT GOT TO THE POINT WHERE I WENT TO RUBEN’S DR. AND ASKED FOR A WHEEL CHAIR. EVERY WHERE I WOULD GO WITH HIM, HE’D END UP GETTING LOST BECAUSE OF HIS VISION. THE WHEEL CHAIR HAS MADE IT EASIER FOR US BECAUSE HE FEELS SAFE AND COMFORTABLE WITH IT

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17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!
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