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He

10th December 2014

I am a 33 year old mother. My oldest son was diagnosed in 2003 at the age of 6 1/2, he is now 11 1/2. I have a 9 year old boy which was tested and came back positive. A 6 year old daughter which we won’t know if she will be a carrier. I also have a 6 month old boy which also came back positive with the ald gene. At first when my son was diagnosed I was distraught. But, I came to realize, things happen for a reason. I have read over and over of people being mad. I don’t blame them. But, we can’t be mad. We need to accept and continue to be the best mother, brother, sister, aunt, uncle, etc. we can be and show that this disease cannot ruin a family. This is a time where families come together and work together in helping each other out. I want to let all mothers know, we were chosen by God and we are his angels. We are doing his job for him down here. At the end we will be rewarded for the job we are doing with our fsmilies. May God bless all and never give up the fsith.

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20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at dawn.laney@emory.edu or ‪404-778-8518‬. ...

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