10th December 2014

My son Manny was diagnosed with ALD on March 31, 2003 at the age of 6 ½. His signs and symptoms were very minimal. Our Pediatrician thought he had a brain tumor that was effecting his vision. We were sent for an MRI and they found ALD instead and it was confirmed by VLCFA through Dr. Moser at Kennedy Krieger. He was treated with a stem cell transplant at Duke University Medical Center less than a month after his diagnosis. The disease progressed very rapidly and he passed away 7 months after he was diagnosed in my arms on November 7, 2003. Hold your children tight and tell them you love them everyday. You can read more about him at