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ANGEL

Our son Angel was diagnosed when he was 14 yrs. old with ALD, We started noticing his failing school grades, where once he had been in a gifted and talented program. We also noticed that he would get disoriented more…

ALD in Lebanon

My small story is about a very rare genetic disease called ALD, which took our younger kid JAD. Last summer on 28/5/2004, Jad had an epilepsy crisis for 10 minutes while he was playing at school (he had more…

JackJack

this is jackjacks mom kerry. after an initial dx of leukoencephalopathy and then a phone call from same doctor (out of state at time of first grand mal seizure) to test for ALD and refusal by ped neuro more…

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