Our son Angel was diagnosed when he was 14 yrs. old with ALD, We started noticing his failing school grades, where once he had been in a gifted and talented program. We also noticed that he would get disoriented more…

ALD in Lebanon

My small story is about a very rare genetic disease called ALD, which took our younger kid JAD. Last summer on 28/5/2004, Jad had an epilepsy crisis for 10 minutes while he was playing at school (he had more…


this is jackjacks mom kerry. after an initial dx of leukoencephalopathy and then a phone call from same doctor (out of state at time of first grand mal seizure) to test for ALD and refusal by ped neuro more…


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