COMMUNITY WEEKEND 2018
CROWNE PLAZA DOCKLANDS HOTEL
4 TO 7 MAY 2018
The ALD Life Community Weekend brings together ALD and AMN sufferers and their families, alongside doctors, researchers and scientists from around the world to support each other and discuss how ALD and AMN affects them. It gives sufferers and their families the chance to talk freely about mutual issues and focuses on activities designed to put attendees at ease and encourage interaction, such as an ice-breaker quiz, children’s activities for all ages and abilities, workshops on condition management and self help, research and treatment updates. It also gives medical professionals the opportunity to hear directly from those affected and presents a rare opportunity to progress research ideas and best practices for treatment.
Please click here for the detailed agenda.
PRESENTATIONS AND PHOTOS
To find out more about how this year’s event went, including photos and presentations, just click here
Following the event, attendees were asked for feedback to gather opinions on the event and make the next one even better. Attendees were very positive about the Weekend, which they saw as highly valuable in helping them to cope with ALD and AMN. Feedback was made into a report which you can see here.
You can also see a short summary of the report here.