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Campaigns

Florida State Newborn Screening campaign
Newborn Screening Campaigns
Add ALD to the Recommended Uniform Screening Panel www.change.org/petitions/save-the-boys

State of Florida Government: Initiate Newborn Screening for Adrenoleukodystrophy www.change.org/petitions/state-of-florida-government-initiate-newborn-screening-for-adrenaleukodystrophy

State of Texas, Texas Governor, Texas Senate and Texas Legislature: Newborn Screening for Adrenoleukodystrophy (ALD) www.change.org/petitions/state-of-texas-texas-governor-texas-senate-and-texas-legislature-newborn-screening-for-adrenoleukodystrophy-ald

State of Louisiana Government: Newborn Screening for Adrenoleukodystrophy www.change.org/petitions/state-of-louisiana-government-newborn-screening-for-adrenoleukodystrophy

Billy and Chad’s Law: Add ALD to Newborn Screening www.ipetitions.com/petition/billy-and-chads-law-add-ald-to-newborn

Facebook

2 days ago

ALD Life

European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. Support the #ProtectERNS campaign by adding your signature: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=5e939ee3e2&e=9105c....

Check out Genetic Alliance’s social media toolkit to help spread the word: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=a4e046029e&e=9105c...
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