Santa in the City

This year ALD Life staff and friends will be taking part in Santa in the City. We would like to invite you to join us as we fundraise to help bring hope to individuals and families that are suffering from ALD and AMN.

The route:


Starts with you crossing the world famous Millennium Bridge.


You will then run along the South Bank, continue over Southwark Bridge, pass the Tower of London and Tower Bridge and then head through the City to the finish in Paternoster Square.

This is a truly iconic route! No previous experience is needed for a 5k of this type. The route is relatively flat and you can either run, jog or walk. This event will definitely get you feeling festive!

Contact Elena to reserve your place at this festive event or call: 020 7701 2628


Would you like to sponsor the ALD Life team? Please visit the team JustGiving page for more information.


20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at or ‪404-778-8518‬. ...

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