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Where your money goes

Wheelchair funded by ALD Life

• We provide grants to patients and families like Eoryh Fuensalida (above) to help them get access to equipment, care or therapy.
• We organise a get together family weekend to get patients and families together to share their experiences.
• We produce health and social care information so newly diagnosed families can learn more about the condition.
• We continue to campaign to improve early diagnosis in the UK through our Link between ALD and Addison’s disease and Newborn Screening project.
• We fund medical research projects looking into finding better treatment.

If you would like to help make sure we can continue to fight for patients and families with Adrenoleukodystrophy (ALD) and Adrenomyleoneuropathy (AMN), please see our get involved page for fundraising ideas – and join Team ALD Life.

Case Studies
You can read more about patients and families we’ve supported below:

Alex Hunt

Abraham Rivas

Christie E Smith

Logan Walker

James Lessard

Jamie Barlow

Karen Harrison

Jack McCall

Lee Clark

Michael Martin

Nicholas Ferri

Julian Henderson

Carlete Alves De Araujo

Facebook

20 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at dawn.laney@emory.edu or ‪404-778-8518‬. ...

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