Impact Survey 2018 Report and Summary

A big thank you to all who took part in the ALD Life Impact Survey 2018, giving us valuable feedback on what we do well and what more you want from ALD Life. We will use the results of the survey to guide our plans for supporting you in the future, as well as to bring in valuable funds for our Support Services.

We have compiled the results of the survey into a report, which you can read here: Impact Survey 2018 Report

Looking for a bite-sized overview of the results? We also made a summary report, available here: Impact Survey 2018 Report Summary

If you have any queries or comments on the survey or report, please get in touch.

We love to hear feedback on our services all year round, to help us to be the best possible support to people and families with ALD and AMN.


17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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