In the media

In The Media
Press Releases
South London Press: Alex’s Dream to go to Disneyland
South London Press: Members of the Bad Girls cast supporting Alex’s Dream campaign
South London Press: Walking for Alex
South London Press: Thank you all for supporting Alex’s dream
What’s On TV: Oil of Life
South London Press: Sainsbury’s Local Charity of the Year Award
South London Press: Enterprising Sara Charity Shop No 3
Bristol Evening Post: Bristol dad driven by love to find a cure
Penge TownTalk: Sainsbury’s get it in the bag and supports local charity
South London Press: Tribute to Alex
Southwark News: Mum’s Battle to Help Families feature – Home, Part 1, Part 2, Part 3
South London Press (Letters section): Charity Shop in tribute to Alex
South London Press: Help us to find cure
South London Press: Mum’s new shop is dedicated to Alex
South London Press: It’s rare so we care
South London Press: Sara puts life into charity
South London Press: Creative team gets recycling for charity

South London Press: Sailing the world to raise cash for rare brain disease

Richmond and Twickenham Times: Jon Milne is on a quest to race across the seven seas

TV Appearances
BBC Medical Mysteries Documentary – YouTube page.
Channel 4 The Curious Case of the Clark Brothers documentary – YouTube page (non-UK users) or Channel 4’s YouTube page (UK users)

Patients and families
BBC: Leicester boy with ‘Lorenzo’s Oil’ disorder dies
Daily Mail: We thought our son needed glasses – then doctors revealed he had ‘Lorenzo’s Oil’ terminal brain condition
Daily Mail: I’d give my life to have my cheeky boy back.
Biochemist E-volution: Life with Adrenoleukodystrophy
Daily Star: Tragedy of ‘killer gene kids’ as fatal illness strikes two brothers and baby
Kapuso Show TV: Reporters Notebook: Eoryh Fuensalida (in Filipino)


Unable to display Facebook posts.
Show error

Error: (#4) Application request limit reached
Type: OAuthException
Code: 4
Please refer to our Error Message Reference.