European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. Support the #ProtectERNS campaign by adding your signature: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=5e939ee3e2&e=9105c....
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Kim and Danny
Kim and son Danny share how Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN) have affected their lives, from the struggles of dealing with their own symptoms to the pain of losing a child to ALD; Billy, aged just 7. They hope that this will help others to know that they are not alone, and reach out to ALD Life for support.
Read their story here: Kim and Danny’s Story
