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Funding boost for leukodystrophy in Australia

19th December 2018

Some welcome news for our friends at the Australian Leukodystrophy Foundation: The Australian government is providing $3 million to “close the loop from genetic diagnosis to clinical treatment” for childhood leukodystrophies

The government’s media release explains the research process that this three-year funding will support, from patient recruitment for genomic diagnosis, to disease modelling, pre-clinical testing and human clinical trials.

The goal is to reduce the proportion of undiagnosed leukodystrophies to less than 10% by 2020, to reduce the time from diagnosis to treatment and ultimately to search for new treatments for these conditions. 

This is great news for our Australian friends and has the potential to produce research which could help those with leukodystrophy anywhere in the world. 

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17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!
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