Impact Survey 2018 now open!

10th September 2018

The ALD Life Impact Survey 2018 is open from now until Monday 29th October

We would really appreciate your feedback on our services and on how you and your family cope with ALD and AMN. This will help us to improve the support we provide by showing what works, as well as attracting funding which can enhance this support even more. While individual responses to the survey will remain anonymous, a report will be published to show results and trends. Please click below to complete the short survey (up to 15 mins):


Thank you for your support!


18 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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